There are one billion people in the world like me (and most likely like you too, since you are reading this blog): people who suffer from migraine. Although you already knew it was so common, you still probably feel (as I do!) that you are the only person in the world who suffers this much, and in a way no-one else can understand.
This is called the paradox of living with chronic pain disease. It is so much easier with flu: during the flu season most people around you are also sneezing, coughing and moaning, at workplaces or at home in bed. It helps to know that you are not alone. It makes suffering tolerable. When ill, you may enjoy being pampered by healthy family members. You may even update your Instagram with a photo of you on a couch in front of the TV with a blanket and a bowl of chicken soup. Post #sickasapuppy and empathetic faces, thumbs and hearts will fill the screen.
During migraine attack, there is no-one but you and the pain inside your head. The excruciating pain grabs all your attention, unplugs your power cords, shoots you with a taser, holds you to ransom. It allows no people in sight. Pillow adjustments by the loving spouse make no difference. Selfies do not even cross your mind. The only thing you care about is to get rid of the pain. You count the minutes.
Migraine is one of the most severe and disabling neuropathic pains one can experience. That is a solid fact. When, where and how migraine affects people varies considerably between people, and also within each individual. A billion people means several billion variations of migraine attacks. Not every attack is identical, nor are the triggers always the same. The pain-free periods between the attacks also differ. For the lucky ones, it is 24 months; for the unlucky ones, it is 24 hours.
A billion people is a massive peer group. That said, it is still only you who knows your migraine and only you can find the best ways to live a good and meaningful life with this disease. Despite this disease.
You don’t have to figure out everything by yourself, though. So much scientific evidence, and understanding of good practices, has emerged during recent years on effective ways to treat migraine attacks – as well as prolong pain-free periods – that all the tools you need for your own toolbox are already out there. You just need some easily digestible information, some perseverance, some help from skillful healthcare professionals… and some support from the billion peers, of course.
Written by Dr. Helena Miranda, pain physician, chronic pain sufferer (including migraine), and author of the new book Rethinking Pain – How to live well with chronic pain.